tag:blogger.com,1999:blog-865068097222517730.post7053673461063052575..comments2011-04-22T20:00:45.326-06:00Comments on Teagan James Stewart: Bryson and Amandahttp://www.blogger.com/profile/04914403843358299490noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-865068097222517730.post-33884352631062736402009-10-28T22:34:13.235-06:002009-10-28T22:34:13.235-06:00Dr. Church is also my pediatrician. Granted, my k...Dr. Church is also my pediatrician. Granted, my kids don't have the same problems, but he is a great doctor. And his PA was one of my husband's students at Weber State, and he's a great guy also. I've always felt totally comfortable with both of them. So glad he is doing so well!Katie Pricehttps://www.blogger.com/profile/03568518239327634258noreply@blogger.comtag:blogger.com,1999:blog-865068097222517730.post-33881699897226834092009-10-27T19:22:25.238-06:002009-10-27T19:22:25.238-06:00Swallow studies are tricky things for these little...Swallow studies are tricky things for these little heart babies. It took Kylie a while to get it down. She had a NG for 6 months. Don't worry they all have little things to work on. I was just going to tell you when you hear the "H" word it happens fast like days. They won't even say it if it's not close. Just a little FYI I wished I would of know before we came home, I don't know if your pumping, but your insurance will most likely pay for a great pump, You just need to get a script from the doctors. Pick a pediatrician quick. I had the hardest time finding someone that felt comfortable taking Kylie, my boys ped didn't want to deal with the "heart" baby issues, I found a great one his name is Jason Church, he is in the Mountain veiw clinic in pleasent veiw. Kylie was is his 1st and only HLHS patient, but he is amazing. Great office and they really understand the germ thing. They don't let Kylie wait in the waiting room and will work her in on any day. Get a home health crew set up, we went with IHC home health because IHC was our insurance, Ask them to get the feeding pump ready and have them bring it to the hospital, Know how it works before you leave the parking lot, We had no idea how the pump worked when we got home and no one could help us for hours. Ask the cardiologist to write a script for a pulse oxomiter. Once your insurance pays so much to rent it, it becomes patient owned. Trust they are life savers, I took Kylie in a couple days a week just to check her O2. Wow this is a novel. Oh on the feeding pump, I have 2 boxes of bags if you get the same pump I would be more than happy to let you have, also tegaderm and duoderm. That stuff is really expensive and I don't see us needing it in the future. Kylie was allergic to it so I found really cute princess tape at walgreens, they have blue with cars for boys. It is micropore, it is less harsh on those cute little checks. Looks like he will be coming home soon, again if you need anything let me know hope you don't mind the novel ;)<br />ChrissieOne Happy Heart Familyhttps://www.blogger.com/profile/08047148321628568770noreply@blogger.comtag:blogger.com,1999:blog-865068097222517730.post-90173366201476606672009-10-27T13:25:21.637-06:002009-10-27T13:25:21.637-06:00Sweet pictures!! He is a miracle baby. Love and pr...Sweet pictures!! He is a miracle baby. Love and prayers continue for your sweet family! We all have learned to count our blessings as we watch you be so strong and upbeat. You have been through so much but are still amazing examples to us. Thanks for posting. We love you!Annehttps://www.blogger.com/profile/13179154385241596142noreply@blogger.comtag:blogger.com,1999:blog-865068097222517730.post-21303064746036046532009-10-27T10:00:09.283-06:002009-10-27T10:00:09.283-06:00What a miracle baby! He's doing so good. We ar...What a miracle baby! He's doing so good. We are all so thankful. I can't even imagine going on this roller coaster your family has been on. I pray the ride continues to get better and you can bring him home soon. We love you guys!Carrie https://www.blogger.com/profile/06596811516421213749noreply@blogger.comtag:blogger.com,1999:blog-865068097222517730.post-11458555582322238532009-10-26T22:53:09.809-06:002009-10-26T22:53:09.809-06:00We are so very glad that things are continuing to ...We are so very glad that things are continuing to improve! Definitely worth the fight you all have endured! We're praying for you all and look forward to every milestone you pass! <br /><br />Ben and MelindaBen Steinerhttps://www.blogger.com/profile/13708488523782726718noreply@blogger.com